With money raised at its Christmas Festival Dinner in early December 2019, Kynaston Lodge presented a cheque for £250 to the Corunna Close Residential Care Home in St.Neots which cares for patients suffering Prader-Willi Syndrome (PWS)
Prader-Willi syndrome (PWS) is a rare, complex genetic disorder that affects both males and females from birth and throughout their lives. It causes low muscle tone with consequent motor developmental delays, a mild to moderate learning difficulty, incomplete sexual development, and emotional and social immaturity, which can lead to challenging behaviours. During childhood, an overwhelming and insatiable chronic appetite usually develops which, without rigorous food management and exercise regimes, leads to food seeking, stealing and life threatening obesity. PWS occurs randomly in about 1:22,000 births and it is estimated that there are about 2,000 living with PWS in the UK
Claire Creek, wife of Worshipful Master, W.Bro. John Creek, was delighted to receive the support of the Lodge members and partners. Claire is the Care Centre Manager and said “At Corunna my aim is to make every moment count, improve quality of life and set achievable goals, providing a meaningful future”. The 4 residents require 24/7 supervision with every aspect of daily living. Due to the complexity of the condition it is little understood and as a consequence the residents can be marginalised in society due to the physically challenging behaviour displayed. PWS affects every moment of every day – constant hunger pains combined with impaired cognitive ability, social awkwardness and a vulnerability that requires 1-1 staffing at all times. Corunna is managed by Claire with a staff team of 13 others and all of them, staff and patients alike have asked that their thanks to be passed to the Lodge. Claire also said “It’s the donations and fundraising which help improve their lives and HFT, a national charity providing services for people with learning disabilities, are always so grateful for everyone’s kindness to those less fortunate”.
